Surviving Life with a Toddler in a Spica Cast

There’s an old saying, “You are only as happy as your least happy child”. I’m sorry to say I learned that the hard way these past few weeks.

Four weeks ago, my family’s life got flipped upside down by a freak accident. My almost-three-year-old son, Jackson, was playing with my husband on our bed, jumping around and being silly. Pretty much exactly the same stuff he does much every day. But on this day, a normal Sunday afternoon, something went wrong. My son landed wrong and twisted his left leg, breaking his femur. I was in another room, listening as they wrestled around and Jackson shrieked with laughter. But then…. I heard my husband yell, “Betsy! Oh no…” and a split second later, the screaming, agonizing cry of my little boy. That is a moment I hope I never relive the rest of my life.

Without knowing any details yet, I knew it was bad by the way my husband yelled for me. When I ran into the room, Jackson was hysterical, crying and shaking and unable to talk. We woke up our three-month-old daughter, put everyone in the car, and raced off to Urgent Care. On the way, my husband told me, “I heard something pop”, and I knew something really bad had happened. The next 24 hours were literally the worst moments I’ve had as a parent – from the x-rays to the operation to repair his leg to seeing my son in pain – I wouldn’t wish those things on anyone. After my son came out of the operating room around midnight, I saw him for the first time in what we called his “magic pants” – a hip spica cast that extended from his chest down to his ankle on one leg, and down to his knee on the other. This type of cast is used to prevent the hips and legs from moving – meaning, for the next 5+ weeks, my son would be unable to walk or even sit in a chair. He was basically in a vertical, claustrophobic looking fiberglass suit. Even when the doctor had explained what a “spica cast” was, there was no way I could be prepared to see my son in what looked like a full body cast. And there was certainly no way to prepare for the emotional toll it would take on all of us.

It was devastating. My son, normally one of the most active, athletic kids I know, was basically immobile for at least 5 weeks. And at 2 years old, he didn’t really understand what had happened or why he couldn’t move freely anymore. That first night was a nightmare. He woke up regularly screaming for me to help, to take his “pants” off, that his leg was “stuck”. He was still in pain, and due to the very strong pain medicine he was given, he was extremely sleepy, grumpy and miserable. And so was I.

I’m not proud to admit it, but I basically had a meltdown. Seeing my son in pain, feeling so helpless to make him feel better, and feeling overwhelmed by the prospect of caring for him in his cast, while also tending to a newborn at home, literally broke me. I cried more in that first week than I probably have in the first 2 and a half years of his life. Every time we’d go for a walk outside and he’d ask to go to the park, or play basketball, I cried. When we would hit a bump on the sidewalk and he’d yell out in pain, I cried. When I woke in the morning to his screaming, I cried. Those first few days I found it damn near impossible to look at the bright side. But I am my mother’s daughter, and now, 4 weeks into this experience, I feel like I can look back and realize there were some blessings along the way. Here are a few of the “bright sides” I’ve found…

The kindness of friends, neighbors and strangers…

From the moment word got around that my son had broken his leg, people began to reach out to us. This meant so much to our family, and greatly lifted our spirits. Friends brought by some of Jackson’s favorite things (Candles! Balloons!) and meals for our family. Others sent care packages of toys that would be easy for him to play with while lying on the couch. And a wonderful woman at Ivy Rose Spica Chairs made him an airplane chair. (See my review Here). We received cards with stickers inside, text messages of encouragement, video messages to make Jackson smile and visits from friends and family. I hate the reason behind all this kindness, but I love that people were so caring and thoughtful. This was one of those times that we truly needed a village to help us…and they did!

Slowing down…

I’m not one to sit around the house normally. I plan our lives pretty full and this fall was no exception. We had swim classes, playgroups and preschool lined up for Jackson. I had plans to take Chemistry, exclusively pump for my newborn daughter and complete observation hours for my degree. Let’s just say….everything changed that day. I literally quit breastfeeding and pumping the day Jackson broke his leg. It’s something I feel tremendously guilty about, but I just could not do it. Preschool got pushed back until at least November, and swim lessons and playgroups were cancelled. We have spent so much time at home these last few weeks that I can hardly remember what it’s like to leave the house, or what my normal life is like. It’s been a change, but it hasn’t been the terrible nightmare I was expecting. We have gotten creative – playing balloon baseball with a pool noodle, and knocking over paper cups with plastic balls. We’ve had (very gentle!) tickle fights. We’ve made up silly jokes and read tons of library books. And yes, we watch a LOT of movies and Daniel Tiger.

Here are some good activities to stay busy:

Skoolzy Rainbow Counting Bears with Matching Sorting Cups

ALEX Discover Button Art

Melissa & Doug: Lace & Trace Activity Set

Melissa & Doug: Scissors Skills Activity Pad

Do A Dot Art! 6 Pack

Quality Time…

We are normally very busy, so when I’m home with the kids, a lot of the time is spent getting stuff done around the house. Cooking, cleaning, laundry, grocery shopping. I have felt for awhile, long before Jackson broke his leg, that I needed to try to make more quality time for us. Time where I actually sit down on the floor and build Lego towers, or let Jackson make me pretend lunches with his play food. I do these things when I can, but it never feels like I do it enough. This experience has forced me to slow down and connect with Jackson. He needs a lot of attention – basically every second he is awake – and I am giving it to him. There are a lot of days I don’t shower or put makeup on. There is usually a stack of dirty dishes in the sink. We are eating more junk food than normal – takeout or fast food. But I’m finding that sometimes it’s ok to cut corners on those things when it means I am able to give my kids a little extra time or attention. Despite the limitations of Jackson’s cast, we have found lots of ways to have fun together, and plenty of time to enjoy new things.

Empowerment…

Four weeks ago I sobbed to my mom saying, “I can’t do this. I can’t.” At that point, Jackson was hysterical pretty much every waking moment, and it was mentally and emotionally draining. On top of that, we were learning to care for his cast – making sure it didn’t get wet or dirty – and trying to manage his pain with 3 different medications. All of this on top of still adjusting to having a newborn, and I just felt like it was going to be an impossible task. Somehow, with the help of my friends and family, we have made it this far. We have become accustomed to using three diapers tucked into his cast to prevent his cast from getting wet. We have adjusted to carrying him around the house. We have found ways to take walks (he fits in our double Bob!) and even a way to enjoy the playground (handicapped swings!). Despite feeling like I wasn’t “mom enough” to handle this crisis, I did. Most days feel like years, and many still have tears. But I’m doing it and that’s pretty empowering.

As I near the end of this season in my life, I am so grateful that it wasn’t anything worse. Jackson’s leg will heal, and so will our hearts. It was scary, and traumatic, and I wish it hadn’t happened. But since it did, I am choosing to believe it happened for a reason and that maybe there were lessons to be learned along the way. We have all had to adapt to this “temporary normal” and there are things we will carry with us even after the cast comes off.

If you have any questions about Spica Casts or survival tips for kids with Spica Casts, please let me know.

Here’s wishing everyone a SAFE and wonderful fall!

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Madison Mom
Betsy is a mom to two sassy, spunky and spirited kiddos and wife to an adventurous, soccer-loving Chemist named Noah. She is originally from the Chicago suburbs but has bounced around the world with her husband before landing (hopefully permanently!) in Madison. Her first child, Jackson, was born in Germany during their two years living abroad. Betsy loves exploring new cities, donuts (any kind, anywhere) and being a stay at home mom. She is currently in school with plans to become an Occupational Therapist.

90 COMMENTS

  1. Thank you for sharing. My son just turned 2 . He broke his femur yesterday. We r still in the hospital , and I need to fly back to the US in a few days. I hope your children had good recovery. I need to hear happy ending stories . Please share about the healing. Is Jackson back to normal ?
    Thank you and speedy recovery for all of you

  2. Hello, I’m a full-time nanny and the 2.5 year old boy I watch fell and broke his femur a few days ago. Any advice you can give me? He is a pretty high energy, smart, engaged kid so I’m worried about finding enough things to do around the house. Also, what was recovery like? Any info helps!!

    Thanks,
    Audrey

  3. Hi Betsy,

    My 2 year old girl just broke her femur. She sleeps “well” at night, I have been moving her around every 2hrs or so. But I just need some tips, I dont want her to be depress or anything like that. Also what’s the best way to carry them.

    My email is [email protected]

    Thank you!

  4. Hi!
    My 20 month old broke his femur a few days ago, and we also have a 5 week old baby… so far the worst part is trying to manage his pain/ muscle spams. Only today has he started becoming frustrated with not moving, and begging to get down to walk, or go play. Also we are having a tough time keeping him dry! I would love any tips!

    • Also, did you continue a normal schedule with naps?? It seems like he would never use enough energy to need one AND sleep all night?

      • I think we had a similar issue, and he also hated sleeping in his cast at first so that made naps really hard. I wouldn’t stress about skipping a nap. I feel like everything “normal” is NOT normal while the cast is on. It is total survival mode. Do whatever you think is best for all of you.

    • Oh my gosh. You are in almost the exact same situation we were – newborn and toddler in a spica. It’s rough, that’s for sure, but it does get easier after the first couple weeks. It seems like a good sign that your son wants to get down to walk/play – hopefully when his pain is under control he can get down on the ground and try army crawling! My son loved to do this and was a total pro at getting around in his cast by the end. We even played hide and seek! Until you (and he) feel comfortable with him moving on the ground, I would definitely suggest getting out of the house. Take walks (we used our bob stroller or wagon), try to find a playground with a handicapped accessible swing (those fit the cast fairly well) or just go for a drive. It’s hard on everyone to stay stuck in the house all day.

      In terms of staying dry, that is one of the hardest and most frustrating parts of the cast. There really is no way to keep it completely dry. We used a 3 layer system (heavy incontinence pad tucked into a diaper, all of which got tucked into the cast, with a large diaper around the outside of the cast holding everything in). This worked okay during the day but definitely not perfect. Switching positions helps a bit – i.e., putting him on his belly, etc. One of the best things was a spica chair (we used Ivy Rose Spica chairs and I would highly recommend them!) which helped him sit upright so urine wouldn’t go up into his cast as easily. If he did get wet (usually every morning, and sometimes once during the day), we would dry him out with a hairdryer. It was awful but helped. By the end of 5 weeks his cast smelled so bad that honestly nothing helped too much. Just do your best. I think we also used soap and water on a washcloth once or twice underneathe and then dried with a hairdryer.

      Good luck!

  5. Hi Madison,

    My daughter just got her spoca cast removed after a month with it. (Wasnt a spiral fracture)
    My question is how long did it take for your son to walk as he did before? (No limping)

    Thank you,
    Angie

    • Hi Angie,
      I honestly don’t remember exactly how long it took for him to walk without a limp, but it was probably within a month. He was always really active prior to his injury and he picked right back up after the cast came off. He was tentative for a day or so because it was stiff and uncomfortable, but he was pretty determined. We followed his lead and didn’t push him at all. We also didn’t baby him – if he felt like he could climb steps, we let him. If he wanted to play on the play equipment at school, he did.
      Hope that helps!
      Betsy

  6. Glad to find this post as well!! I am in desperate need of sleeping tips and how to handle the poop situation. We are using a urinal for the pee which is great, but he has yet to poop and it’s day 6. ‘Y little guy is 3 and had a spiral break of the femur, so our cast is huge with the bar. [email protected]

    • Hi! Your post really helped me feel determined again. My 18month old was in a car accident with my Grandmother. He broke his Femur and we are in the same type of spica cast as your son. He also had some bleeding in his brain. We are officially one week out from the accident and it seems like we are not getting any sleep and he has been extremely irritable at times. We have a bean bag chair for him and a baby recliner. What I would love advice on is where did he sleep and how? He has always slept in his crib and done well. We are currently on the couch and it’s just not working. I am 5 ‘months pregnant and I really don’t want to put him in my bed with me but if I don’t get sleep soon …omg!! Please any tips

      • Hi Jennifer,
        Oh my, it sounds like it has been a really tough week for you. I will try to help answer some of your questions, and feel free to email me if you have any more. My email is [email protected].

        My son slept in his toddler bed and he did ok like that. We had him sleep on a pillow (which we covered with a waterproof pillowcase because otherwise it would have smelled so bad). We adjusted it so he was as comfortable as a kid in a giant cast could really be, but it still took him awhile to get used to it. None of us got much sleep in the beginning. I would probably let him sleep with you if you think that would help, but make sure to take care of yourself, too. My motto with kids is usually to do whatever you have to do to get some sleep! 🙂

        The first week or two are the absolute hardest, and hopefully after that things will settle down for you all. I will be hoping you both get some sleep soon!

  7. Hi there. I’m sobbing reading all this at 3am as I sit next my 2.5 year old son that will be put in a spica cast tomorrow morning. He fell just right on our carpeted living room floor today while playing with his 6 year old brother. I’m terrified of the weeks to come as he is normally such a happy child. I’m dreading seeing him so uncomfortable. I am also 17 weeks pregnant so this has been an emotional roller coaster of a day.

    • Hi Andrea,
      So sorry to hear about your son. 🙁 Your lives will be a bit different for the next 5+ weeks, but you will get through it and he will bounce right back! It’s amazing how resilient kids are – the first couple weeks are pretty rough but he will most likely be army crawling and acting like his usual self by the end of it. If you have any questions as you navigate this process, feel free to email me at [email protected]. I’d be happy to send you some ideas of things that worked for my son. Hang in there, mama!

  8. Hi…So sad to hear about everyone else’s children! My newly turned 4 year old broke his femur on Tuesday sled riding :(. He is almost completely flat! Is that how your son was? Does the Spica chair work for kids lying flat? That is the hardest part so far!

    • Hi Jamie,
      So sorry to hear about your son. 🙁 My son was pretty flat in his spica cast, too. The chair helped because it’s shaped so the legs sit on it almost like riding a horse. We gave her measurements of my son’s cast/legs so she could make sure the middle would fit between his cast. It was really nice to have something to help him sit upright! Let me know if you have any other questions, and I hope the next month flies by for you and your family.

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